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Posts Tagged ‘ Autism ’

Special Needs

Family Blog Nosh Magazine{Originally published on The Big Piece of Cake}

I don’t know if I’ve mentioned this before - but my three year old son, Oliver is weird.

This is at least partly due to something called SPD (sensory processing disorder) that causes him to engage in activities that “feed” his need for a lot of sensory input. His teacher explained this to me by saying, “remember that kid in your class who just couldn’t stay in his chair? The one who would fidget so much that he’d actually fall out of it sometimes?” Well yes actually - I do.

I remember several kids like that. They were the ones who ate paste in kindergarten, fell into the pond on the second grade field trip and consistently got in trouble for “touching people” in more or less every grade through middle school. And now, as it turns out, I’ve given birth to one.

This shouldn’t be too much of a surprise since we speculate that my father was like this as a boy, AND after reading up on the subject, my husband says that he was definitely a sensory seeking SPD child. Thanks guys - you’re the best. The inability to walk past a puddle without lying down in it was one of the qualities I prayed for every night when I was pregnant with Oliver. Right up there with ten fingers, ten toes and the immediate ability to sleep through the night. (I’m just kidding about that last one of course. No first time pregnant woman worries about something as silly as their child sleeping through the night. They’re too busy obsessing over baby names, nursery themes, and important registry items like educational mobiles.)



Miracles in the Flaws

Overcoming Adversity Blog Nosh Magazine{Originally Published on Lizzie’s Home}

When I was nineteen years old, I found myself taking a front-row seat in an honest-to-God, wish-I-could-bottle-that-feeling miracle.

j-in-phototherapy-unit.jpgAfter a twenty-eight hour labour, an ugly, red, scrawny mess of arms and legs was twisted from my body, four weeks before his due date. The conehead my son sported from his prolonged journey down the birth canal was very pronounced and truly awesome to behold. His Apgar scores were low. He was whisked away for some oxygen.

At that point, I didn’t care where he went, as long as he was being cared for appropriately and I could cover up the bits of my person that in any other circumstance would never be displayed. It is amazing how the most prudish of women can become the most liberal when in the throes of childbirth. There were bits of me that were irreversibly altered by the birthing process but in the end those particular battle scars would fade, and new ones would take their place.

On the second day after his birth, J turned an alarming shade of buttercup yellow which had the doctors scrambling for the big scary humidicrib with fancy lights and cords. You know, the type with holes in the side where distraught parents are permitted to insert only their hands to stroke babies they should, by rights, be cradling in their arms.

My little six-pound-nothing imp modelled a hastily cut blindfold of black vinyl almost every moment of the first week of his life. We were allowed to remove him from the phototherapy unit for feedings and changes only. The rest of the time he was to lay naked and sunbathing, save for his Zorro mask, under special lights designed to speed up the expulsion of the bilirubin from his blood. There’s a reason why babies are meant to be covered up. Meconium poops are legendary, and more so for babies undergoing phototherapy…



What do you owe the public?

Overcoming Adversity Blog Nosh Magazine {Originally Posted at Mom to the Screaming Masses}

005

Last week we had our big fishing trip. We took a meal with us, thinking that there might be an eating space nearby. And there was, and so while we set everything up, the kids sat under the gazebo and ate. When the lines were set up and the bait had been (euw!) prepped, we called them out to us and they came running. All except Riley. Often, Riley doesn’t join in, preferring to keep to herself. That’s fine with me. I don’t force her to join in - often, that’s counterproductive to our family enjoyment.

So we were fishing, or, rather the family was fishing and I was watching, because, euw! She strolled from the fishing area to the gazebo, bit her hamburger and walked back. Lather, rinse, repeat. She sang songs to herself and played finger games, stopped to admire some flowers, climbed on the bench and called to me often. When she wasn’t next to me, I kept my eye on her most of the time, flipping from “watch me fish, Mom!” to watching her play. She was satisfied to be alone. In short, it was a time that worked for her. She was content, and that’s a state I strive for. I relaxed, admiring the boats docked in the marina and waving to a woman who walked by with her medium sized dog on a leash.

Until I heard her scream, and scream, and scream - long, ear piercing, heart rending screams that seemed follow each other - as soon as one ended, she began again, without taking a breath.



Learning to Accept My Autistic Son

Overcoming adversity

Originally published on Mother of Confusion

My son was born after midnight during the cooler days of May, before the Central Valley could blaze triple-digit temperatures.

The delivery room was packed full of people. The doctor, several
nurses, my husband, my parents and my mother-in-law were in attendance.
As my son emerged into the world, I expected him to gasp and then cry
about the abrupt ejection.

He did not.

Instead he was quiet and blue. The umbilical cord was wrapped around
his slender neck several times. Of course I didn’t know that yet, but
the jubilant faces of the others gave way to peaked, pinched
expressions.

When I asked what was wrong. The response was, “Nothing. Everything’s okay. It’s okay.”

The reassurances scared me. I was only 20-years-old, but already I knew people lied when things were really, really wrong.

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