{originally published on Because I’m The MOM}

When I started this blog I wanted it to be about my family, one of whom has special needs. What I didn’t want was a Special Needs Blog. I realized though, that to ignore Thomas’s story altogether means that there are things I can’t say because they wouldn’t make sense. So here you go.

When I got pregnant with Thomas I was considered high-risk because I was 36. My ob-gyn suggested that I have the 11-week Nuchal Translucency Test. No problem, I thought, this just goes along with being a little older. I have to say though, that every time someone said “advanced maternal age” within earshot I wanted to smack them sideways and shout “I’m not FIFTY for God’s sake. I’m 36! I’m YOUNG.”

About 2 minutes into the test I saw the sonographer’s face go still and she got very quiet. Not a good thing. She summoned the doctor, a very kind man with a very serious face, and he told me that there was a 50% chance there was something genetically wrong with my baby. Probably something like Down’s Syndrome. My husband and I were devastated, of course, and thus began my running of a veritable gauntlet of tests for the next 24 weeks. The thing is, EVERY SINGLE TEST came back normal. Chorionic Villus Sample? Normal. Multiple in-utero echocardiograms of Thomas’s heart? Normal. Ultrasound after ultrasound? Normal. The doctors were elated, but deep inside I knew there was still something wrong.

Originally Posted at One Thing.

The
injury is old, but it is not completely healed. Much of the pain of it
has passed. I can hardly remember the reason it is there. Yet…when I
look at it, I am tempted. Tempted to pick at it. Tempted to touch it,
just a little. Maybe it’s ready to come off; maybe I can rush the
healing process. I shouldn’t. I know I should let it go.

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Originally Published on Velveteen Mind

Suburban Oblivion recently complained that her two year old had been replaced by demon spawn. She welcomed any interest in buying him on eBay.

As luck would have it, someone took her up on the offer. Someone that apparently can not have children. Sara responded with an exercise in gratitude, expressing that it sometimes takes getting bitch-slapped in the comments to remember how good you have it.

What followed was a discussion in Suburban Oblivion’s comments that touched on a topic that I take very personally. The topic of gratitude and our right to be ungrateful some days. This is something that I’ve been meaning to write about for some time, but always back down. Sara is a great fire-starter, so here goes.

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Originally published at Strange Musings of a Distracted Spunk.

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Originally published at Coming 2 Terms by Pamela Jeanne

Sometimes I’m asked why we stopped pursuing infertility treatment. For
those looking for easy answers you won’t find them here. There was no
epiphany, no dramatic denouement. We were not driven there by a
deadline or a master plan or even an entirely drained bank account.
(Even today, resisting the ever-beckoning siren song of the fertility
industry’s latest advancements has not been particularly easy.)

Our
move away from treatment was a long, slow often circuitous process that
sometimes led us back like a junkie in need of a fix to the
reproductive endocrinology clinic for one more attempt. A little voice
in my head kept egging me on (no pun intended): just one more IUI; one
more round of acupuncture; one more laparoscopy; one more blood test to
determine if there’s a new factor we hadn’t considered or addressed –
all the while the doctors scratched their heads with no clear
explanation for our infertility, dampening our hopes further that we’d
ever succeed.

Strung-out and wondering how we would possibly
cope with another failed cycle, I started to allow myself to imagine a
life not driven by 28-day cycles and endless associated vigils. With
the benefit of lots of exhaustive and exhausting conversations,
and after consuming huge amounts of reading material on coping with
infertility, my husband and I finally began to loosen the tight grip we
had on our increasingly fragile dream.

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Originally published on I Should Be Folding Laundry

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Originally posted on Okay, Fine, Dammit

The minute Emma was born, I knew something was wrong. I’d swallowed a horse, fought its hellish bucking to the death, turned myself inside out, until I won. Until she slid breathlessly — literally — into the world. I listened for her bourning cry but it did not come, because she was not breathing.

I lie there, split apart at the seams and bleeding out, and watched
the scene as if from above. I bore witness while the midwives pumped
oxygen into someone else’s baby for eleven minutes before they called
9-1-1, before two ambulances delivered both of us to a nearby hospital.
It was all for naught anyway — by the time we got there, she was
breathing on her own as if nothing had ever happened.

When we left the hospital for home, Emma was perfect in every way
but one: she would not nurse. She could not suck. I knew the
powers-that-be wanted to remedy the situation with a feeding tube, to
rapidly ameliorate the problem and neatly close out our file, but she
was our second child and so I had faith in my body, and in my baby.
Somehow I held patience as she lost weight.

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Originally published on Mother of Confusion

My son was born after midnight during the cooler days of May, before the Central Valley could blaze triple-digit temperatures.

The delivery room was packed full of people. The doctor, several
nurses, my husband, my parents and my mother-in-law were in attendance.
As my son emerged into the world, I expected him to gasp and then cry
about the abrupt ejection.

He did not.

Instead he was quiet and blue. The umbilical cord was wrapped around
his slender neck several times. Of course I didn’t know that yet, but
the jubilant faces of the others gave way to peaked, pinched
expressions.

When I asked what was wrong. The response was, “Nothing. Everything’s okay. It’s okay.”

The reassurances scared me. I was only 20-years-old, but already I knew people lied when things were really, really wrong.

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Originally published on Loralee’s Looney Tunes

I visited my son’s grave today.

There was no special reason. No holiday or anniversary. No family or friends that live far away who wanted to pay their respects. I was just driving and saw the snow on the ground and wanted to check on my son, clean up his grave, and remove the decorations that I put up for Autumn.

Matthew is buried in a beautiful spot. We put him next to family, a cousin of Jonathan’s that was killed in a car crash with his grandmother when she was only 19. It makes me feel better that his cousin is close by. I will be buried near him, but not next to him because that space was occupied, which makes me very sad.

It used to make me angry.

The grave right next to my son is occupied by what they call a “Pauper grave”. Meaning, that the plot was donated and the family doesn’t have the resources for a headstone. There is a metal marker that has an index card with typing on it. The womans name has been obliterated. All I know is that death occurred in July of 1998 and that she was only 41 at the time of passing.

In the four years since my Little Bug has passed, my feelings about “Her” have changed. It’s still hard to know that this stranger gets a place that I yearn to have, but instead of being angry, I began to be curious about this neighbor of my son. Who was she? What was she like? Did she have any family?

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